Jodie Higgins

At the age of 23, I experienced a sudden collapse while at the gym. Subsequent medical investigations revealed that I had a genetic cardiac condition known as Arrhythmogenic Right Ventricular Cardiomyopathy. As part of my treatment, an implantable cardioverter defibrillator (ICD) was surgically inserted.

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Over the following decade, I experienced recurrent episodes, including multiple ICD shocks. In December 2024, due to the progression of my condition, I was referred for a three day assessment at Wythenshawe hospital for inclusion on the heart transplant waiting list. By June 2025, I had been placed on the routine transplant list; however, my condition continued to deteriorate, ultimately resulting in complete heart failure.

In October 2025, I was transferred to the urgent transplant list and admitted to Wythenshawe Hospital, away from my 2 year old son, not knowing when or if I would return home. Three weeks later, on 5th November 2025, a suitable donor heart became available, and I underwent a heart transplant.

Post-operatively, I developed multiple complications, including multi-organ failure and Sepsis. As a result, I required advanced life support, including extracorporeal membrane oxygenation (ECMO), and was placed in a medically induced coma for approximately three and a half weeks. Upon regaining consciousness, I was informed that I had developed severe tissue necrosis in my extremities as a consequence of sepsis.

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In January 2026, I underwent bilateral below-knee amputations, as well as the amputation of my left thumb and index finger. Following a prolonged hospital stay of four months, I was eventually discharged.

I am currently undergoing rehabilitation and physiotherapy and have received my first set of prosthetic limbs. 

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